Alberta Children's Hospital
Contact: (403) 955-7256Population served: Children who are 2 years off treatment
Mission:
Family centred child health programs, specialized life-saving equipment and advanced pediatric research and education at the Alberta Children's Hospital.
Hematology Transplant Program details:
Nurse Coordinator: Lisa Niotis
Clinic manager: Terri Lee Slykula
Medical team: Kathy Reynolds MD, Lucie Lafay-Cousins MD, Greg Guilcher, MD
The clinic meets Mondays and Thursdays. Sees patients once they are 2 years off treatment. Our multidisciplinary team consists of a pediatrician, family physician, neuro-oncologist, neuro-psychologist, social worker, endocrine consultant, and 3 registered nurses. We do accept patients treated at other centres, but we require a transfer from the previous treatment centre.
Canadian Cancer Survivor Network
Contact: info@survivornet.caPopulation served: Patients and survivors
Other language(s) : FrenchMission:
- To promote health by conducting educational activities for cancer patients, caregivers, and survivors on the physical and financial impacts, and other relevant topics, associated with managing cancer.
- To promote health by providing individuals living with and survivors of cancer, and their caregivers, with access to related counselling, information, or support group programs.
- To advance education by organizing and participating in conferences and speaking engagements to the public on topics related to cancer.
- To advance education by conducting research on cancer patients’ and survivors’ physical, emotional, and financial well-being and disseminating the results of the research to the public.
Cancer Support Community (CSC)
Contact: 888-793-9355Population served: People affected by cancer in the U.S.
Other language(s) : SpanishMission:
To provide support, education and hope to people affected by cancer; to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.
- Offers support through a network of more than 50 local affiliates and 100 satellite locations
- The Living Room - an online support community where you can connect with others 24/7
- Cancer Discussion Boards are an online resource available 24 hours a day, 7 days a week and cover a variety of topics. Receive advice, support and offer tips to other people going through similar cancer experiences.
- Personal Webpage - create a private, personal webpage to help keep family and friends involved and informed. Blog, post photos or videos, and share your calendar with the people who are close to you; they can send comments and offer support or respond to your request for help as well.
- Group Loop – an online community designed to address the needs of teens (13-19) touched by cancer to connect to find support, education and hope while dealing with a cancer diagnosis.
- Frankly Speaking About Cancer – Offers workshops, publications and digital content
- Cancer Transition – an evidence-based programs for cancer survivors who have completed their treatment (in partnership with LIVESTRONG)
- Open to Options – helps patients identify important questions about treatment options based upon personal needs.
CLL Patient Advocacy Group
Contact: cllpag.canada@gmail.comPopulation served: Patient and survivor of chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL).
Other language(s) : FrenchMission:
Advocate and provide education to improve access to health care that will extend the lives of Canadians affected by Chronic Lymphocytic Leukemia (CLL) and Small Lymphocytic Lymphoma (SLL).
LIVESTRONG Foundation
Contact: 855-220-7777Population served: Cancer patients and survivors in the U.S.
Other language(s) : SpanishMission:
To inspire and empower people affected by cancer; to provide support to guide people through the cancer experience, bring them together to fight cancer—and work for a world in which their fight is no longer necessary.
- Provides information on topics that influence the “physical, emotional and practical” effects of cancer
- Provides free, confidential, one-on-one support to anyone affected by cancer, not just patients, through education, referrals and counseling services
- Planet Cancer connects young adults and helps them access support, advocacy and resources.
- LIVESTRONG Fertility - Dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility.
- Maintains a list of LIVESTRONG Survivorship Centers of Excellence, which is comprised of National Cancer Institute(NCI) Comprehensive Cancer Centers
- Offers The LIVESTRONG Guidebook to help cancer patients and survivors as they navigate the health care system.