Population served: CORD provides information to individuals, and links to other rare disorder support groups and organizations from Prince Rupert, British Columbia to St. John’s, Newfoundland.
Canada’s national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.
1 in 12 Canadians has a rare disorder. Many others are affected or at risk but remain undiagnosed and unaware. CORD provides information to individuals, and links to other rare disorder support groups and organizations from Prince Rupert, British Columbia to St. John’s, Newfoundland.
Population served: Canadians who want to learn about or who are impacted by the different blood disorders known together as myeloproliferative neoplasms (MPNs).
Other language(s) : FrenchMission:
We are a patient-led organization committed to improving the lives of all Canadians living with myeloproliferative neoplasms through patient advocacy, patient support groups, and patient communication while connecting with the MPN medical community and providing up-to-date information on research, treatments and clinical studies.
Population served: Canadians affected by cancer
Cancer View Canada connects Canadians to online services, information and resources for cancer control. It is an ever-evolving portal that brings together resources for cancer prevention, screening, treatment, and supportive, palliative and end-of-life care.
Through its collaborative tools, Cancer View Canada also links people in the Canadian cancer community to each other.
Population served: People diagnosed with myeloproliferative diseases in the United States; limited international services
MPD Foundation's primary mission is to finance research on treatments for myeloproliferative diseases (polycythemia vera, essential thrombocythemia and primary myelofibrosis). The foundation also provides a patients and their family information regarding the management of their diagnosis.
- Funds research
- Provides educational materials on MPDs and periodic newsletters
- Helps to coordinate support groups