Information About Blood Cancers for Patients, Families and Healthcare Professionals

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Disclaimer: These resources are regularly reviewed to ensure that links still work correctly and the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect or if you'd like to have your own organization listed here, please email directorycanada@lls.org

Because we want to be sure that our visitors find the most relevant resources, we've listed these organizations in order of relevancy from most specifically relevant to most generally relevant to the topic of this page.

Cancer View Canada
Population served: Canadians affected by cancer

Cancer View Canada connects Canadians to online services, information and resources for cancer control.  It is an ever-evolving portal that brings together resources for cancer prevention, screening, treatment, and supportive, palliative and end-of-life care.

Through its collaborative tools, Cancer View Canada also links people in the Canadian cancer community to each other.

Canadian Cancer Society (CCS)
Contact: (888) 939-3333
Population served: Patients with cancer in Canada

CCS provides information about diseases, support groups, lodging and medical equipment. CCS has local offices throughout Canada to provide assistance within the community.

  • Provides guidelines for diet and physical activity
  • Provides tips for a healthy lifestyle
  • Offers a shopping list of healthy items to stock a kitchen

National Cancer Institute (NCI)

Contact: (800) 422-6237
Population served: People with leukemia worldwide

NCI is a component of the National Institutes of Health and is the federal government's principal agency for cancer research and training.

  • Offers a call center
  • Provides educational materials on leukemia
  • Conducts clinical trials at NCI laboratories and clinics

Chronic Lymphocytic Leukemia Information Group (CIG)

Population served: Patients and caregivers concerned with chronic lymphocytic leukemia (CLL) and small lymphocytic lymphoma (SLL)

CIG, which is associated with Lymphoma Research Foundation, is a patient advocacy group that provides information to people with CLL/SLL and their loved ones.

  • Offers disease and treatment information
  • Offers an Internet-based discussion group for patients and caregivers

CLL Global Research Foundation (CLLGRF)

Population served: Patients, caregivers and healthcare professionals with an interest in chronic lymphocytic leukemia (CLL)

CLLGRF aims to accelerate research in CLL with the goal of finding a cure for CLL as quickly as possible. The Foundation is built on a partnership between patients, their families, the research community and other investors who want to see a cure for CLL.

  • Offers education information about the disease and its treatment
  • Provides information about CLLGRF's funded research

CLL CANADA

Population serve:  Patients, caregivers, families and companions of CLL/SLL patients.
The information contained in cllcanada.ca is from the experiences and knowledge of CLL patients and should never be considered expert medical information or opinion.

The EyeCare Foundation (ECF)

Contact: (212) 832-7297
Population served: Patients diagnosed with intraocular chronic lymphocytic leukemia and healthcare professionals

ECF provides education and support to eye cancer patients as well as information regarding eye cancer for healthcare professionals.

  • Provides case studies, articles and an eNewsletter
  • Provides links to resources for a number of issues related to eye cancer
  • Provides a web-based patient support group
  • Provides a physician finder
  • Provides information for physicians

The JMML Foundation

Contact: (858) 243-4651
Population served: Children diagnosed with juvenile myelomonocytic leukemia and their families worldwide

The mission of The JMML Foundation is to cure JMML and to improve the quality of life of JMML patients and families through research, education, advocacy and charity.

  • Provides a call center
  • Offers disease and treatment information via their website and it is available in several different languages
  • Provides financial grants of up to $500 for families in need
  • Offers Little Heroes Comfort Program, which can provide a child diagnosed with JMML a special mailed package containing age-appropriate toys, crayons, coloring books and various other items
  • Offers a quarterly newsletter
  • Offers online support services via discussion boards
  • Offers quarterly online educational sessions ("chat with an expert")

CML Society of Canada

Contact: (866) 912-7575
Population served: Chronic myelogenous leukemia patients, caregivers and healthcare professionals

The CML Society provides support, education and information, current and emerging treatments and research initiatives for people living with CML and their families.

  • Helps patients access medical, mental health and wellness professionals
  • Provides current disease/treatment information via website and newsletters
  • Organizes seminars to share information from hematology/oncology conferences
  • Organizes quarterly meetings for information sharing among patients/caregivers
  • Provides an eDiary and a self-assessment guide

CML Advocates Network

Population served: CML patients, their relatives and healthcare professionals worldwide

CML Advocates Network is a virtual network of nonprofit organizations supporting patients and their relatives by sharing knowledge and best practice, supporting campaigns, and educating advocates how to build and grow patient groups.

The main objectives of the CML Advocates Network website are:

  • To provide a worldwide web directory of CML patient groups, to allow patient groups to find national support groups in other countries
  • To provide a platform of communication for CML patient advocates, e.g., to share best practice on cancer patient advocacy
  • To provide updated conference information
last updated on Sunday, April 03, 2011
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